Strong Voices

Shocking statistics reveal a stark contrast in health outcomes for people with disabilities compared to the general population. IHC Advocate Shara Turner made a case for change in a recent article in New Zealand Doctor. Intellectually disabled people can expect to live 20 years less than the general population; for M?ori, the gap is even wider. Shara outlines the acute system failure.

We have a profound healthcare crisis disproportionately affecting intellectually disabled people and exacerbating existing health disparities.

IHC New Zealand has recently released a large volume of quantitative data about intellectually disabled people in a report From Data to Dignity: Health and Wellbeing Indicators for New Zealanders with Intellectual Disability.

Shocking statistics reveal a stark contrast in healthcare outcomes between this vulnerable group and the general population, shedding light on systemic failures and urgent needs for reform. Life expectancy up to 20 years shorter

Recent data underscores a glaring disparity in life expectancy between intellectually disabled people and the general populace. Females with intellectual disabilities have a life expectancy of 66 years compared with 84 years in the general female population, while males with intellectual disabilities have a life expectancy of 65 years versus 80 years for males in the general population. For M?ori with intellectual disabilities, the gap is even wider, with life expectancies as much as 12 years below the general M?ori population.

Cardiovascular and respiratory health challenges

The burden of cardiovascular and respiratory diseases weighs heavily on intellectually disabled people, further shortening their life expectancy. They are over two times more likely to have coronary heart disease and 1.5 times more likely to be diagnosed with chronic obstructive pulmonary disease compared with the general population. Alarmingly, M?ori and Pacific peoples face even higher risks, indicating deep-rooted health disparities within these communities.

Mental health struggles

The mental health crisis among intellectually disabled people is equally concerning. They are disproportionately affected by mood disorders, psychotic disorders and dementia, with staggering differences in prevalence compared to the general population, with dementia onset at 45 for intellectually disabled people. The prevalence of psychotic disorders among intellectually disabled people is particularly alarming, at almost 16 times higher than that of the general population.

Healthcare use disparities

The healthcare use patterns of intellectually disabled people paint a grim picture of their access to care. Emergency room visits and hospitalisation for injuries are significantly more common among this group, indicating suboptimal primary care and preventive services.

Shockingly, these hospitalisations include a sizeable number of cases that could have been prevented with earlier intervention, with intellectually disabled people over three times more likely to be hospitalised for a potentially avoidable cause, adding strain to an already burdened healthcare system.

Economic impact

The economic burden of healthcare disparities on intellectually disabled people is profound. Secondary healthcare costs for this group are nearly five times higher on average compared to the general population, with the divide widening significantly in the 45–54 age bracket to over seven times the cost.

Call to action

The revelations arising from these statistics demand immediate and concerted action from policymakers, healthcare providers and communities across New Zealand. It is imperative to address the root causes of healthcare disparities faced by intellectually disabled people, including systemic barriers to access, inadequate support services and stigma surrounding intellectual disabilities.

Comprehensive reforms are needed to ensure equitable healthcare provision, tailored interventions and enhanced support networks for intellectually disabled people and their families. These include investments in preventive care, mental health services and culturally responsive care models to address the unique needs of diverse communities.

In a country committed to fairness and inclusivity, it is essential to confront the stark realities of healthcare inequality facing intellectually disabled people. By prioritising their health and wellbeing, New Zealand can uphold its values of compassion, equity and respect for all its citizens. The time for action is now.

Compared to the general population, intellectually disabled people in New Zealand are:

• 2 times more likely to have coronary heart disease
• 5 times more likely to have chronic obstructive pulmonary disease
• 7 times more likely to have diabetes
• 3 times more likely to have a mood disorder
• 16 times more likely to have a psychotic disorder
• 6 times more likely to have dementia
• 7 times more likely to have a mental disorder
• 7 times more likely to visit emergency departments
• 6 times more likely to have a potentially avoidable hospitalisation.

 

The article is reprinted from the September 2023 issue of NZ Doctor.

 

Strategy needed

IHC is calling for a comprehensive national health strategy that should include:

• Preventive screening programmes targeted at intellectually disabled people in areas such as cervical, breast and bowel cancer screening
• Improving the support for intellectually disabled people and their families
• Free annual health checks focused on preventive healthcare
• Extra training for health professionals on intellectual disability rights and reasonable accommodations
• Funding for carers and others to be part of a care team if an intellectually disabled person is in hospital
• Improving health support with Easy Read and video resources
• Teaching people about health and how to speak up about their health
• Getting medical centres to develop policies to improve the health of intellectually disabled people
• Having an intellectual disability marker in health records and collect, analyse and release separate data about intellectually disabled people
• Creating a wellbeing framework that measures the wellbeing of intellectually disabled people
• Creating a mortality review service improvement programme about the deaths of intellectually disabled people.